First OIT Appt

We drove to the Atlanta area for R1’s first OIT (Oral Immunotherapy) appointment in which he worked up to a dose of 3mg (or 1/300) of peanut flour in water. A wonderful friend of mine let us spend the night with her the night before so we only had to drive one hour to the hospital the next day.

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R1 got a total of 11 doses, he did so well that the Dr skipped a few, increasing a little more quickly than planned!

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In between doses, which were every 15 minutes, we played. I went to the Dollar Tree beforehand and bought a few things and wrapped them so he would have something to do. His baby sister and cousin provided some entertainment, too.

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We were there for about 4 hours total. It went really well. For the most part we were pretty bored, which in OIT circles is considered a good thing.

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Around the second to last dose his stomach started hurting. Dr A suggested a banana and I coaxed him into taking a few bites. It helped but the next dose made it hurt again. But luckily we were where we wanted to be so we just observed for an hour and then went on our way.

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This is the bottle. We fill it with water, shake it and dose every day. We go back mid-January (the doctor is out of the country for the holidays) to updose!

Possibly Pursuing OIT (Oral Immunotherapy) for R1’s Peanut Allergy

About a year ago I learned of this amazing new therapy that could desensitize R1 to peanuts. In case you don’t know he has a life-threatening allergy that we discovered when he was 18 months old. I’ve been researching and reading and asking questions for months now… and trying to talk R1 into it. He doesn’t want to do it. Part of it is fear and part of it, I think, is that he doesn’t have enough foresight and life experience to understand how this allergy will impact him more and more as he grows older. The ramifications of doing more without us around to make sure he’s safe, of trying to date (la, la, la) while navigating this allergy, the list goes on.

I found a doctor that specializes in OIT – he’s the nearest one and is 4 hours away. I called his office yesterday to ask a few questions. The woman I spoke to called back within 2 hours to answer them and then Dr. A called me HIMSELF today, from his cell phone. I asked him my questions about how/whether to proceed with the new allergist we are seeing tomorrow. He gave me a list of what to ask for and said to get back in touch with him when we have the test results so he can compare the new info with the old and we will go from there.

Now to convince the boy to do it. Prayers for peace.